You Can Be
a Leader in
the Hemophilia
Community

Take your leadership skills to the next
level, all while making new friends
and connecting with people like you.
Let's get started!

Step Up Reach Out

WHO:
Young men, ages 18-25, diagnosed with hemophilia A or B
WHAT:
A one-year international leadership development program

AFFIRM

WHO:
Men, ages 26-38, diagnosed with hemophilia A or B
WHAT:
A two-year international fellowship program to grow leadership and advocacy skills

What is Step up Reach Out?

SURO is an international youth leadership program designed to develop and train young adults in the bleeding disorders community who have the drive and ability to become leaders.

SURO was started in 2007 by the University of Texas Health Science Center, Gulf States Hemophilia and Thrombophilia Center (UTHS). Today, it is administered by Global Blood Disorders, Inc.

Program Agenda

SURO participants attend two mandatory program meetings held in September and the following March, with an interim project conducted in between the two sessions.

PART I:

Building the Foundation
of Leadership

Part I of the program will focus on helping participants learn the basic skills they will need to become leaders in the bleeding disorders community. Specific activities will focus on:

  • Team-building skills
  • Self-esteem activities
  • Hemophilia 101
  • History of hemophilia
  • Understanding the components of the hemophilia community
  • Communication skills

Interim Project:

During the time between the two SURO sessions, participants will be asked to identify issues in their communities that need support and define action plans to address these issues.

PART II:

Defining Your Leadership Role

In Part II of the program, participants will have the opportunity to further build their leadership and communications skills and learn from one another by presenting their action plans. Specific activities will focus on:

  • Development of key leadership skills
  • Defining strategies and objectives
  • Making it happen—developing an effective action plan
  • Public speaking and presentation techniques
  • Collaborating to identify key issues
  • "Ask an Expert" discussion on topics relevant to young people with hemophilia
  • Presentations on individual projects

SURO 2014-2015
APPLICATIONS
DUE JUNE 1, 2014

SURO 2014-2015
Session: Part I

Building the Foundation
of Leadership

DATE: October 2-7, 2014
(includes two days of travel)

LOCATION:
San Francisco, California

SURO 2014-2015
Session: Part II

Defining Your
Leadership Role

DATE: March 19-24, 2015
(includes two days of travel)

LOCATION:
Costa Rica

What's AFFIRM?

AFFIRM is an international fellowship designed to mentor and help men with hemophilia develop and expand their leadership skills.

In 2012, the University of Texas Health Science Center, Gulf States Hemophilia and Thrombophilia Center (UTHS) created AFFIRM to mentor adult men with hemophilia and help them develop and expand their leadership skills.

Program Agenda

AFFIRM participants will attend four program sessions over a two-year period. Program sessions will be held both in the United States and other countries around the world.

Each session will have a specific focus, but will include a mix of activities, such as:

  • Presentations and trainings
  • Communications skill-building, such as video filming and editing
  • Visits to research and manufacturing facilities
  • Visits to community advocacy organizations
  • Networking opportunities with community advocates

AFFIRM 2015-2016
APPLICATIONS DUE
NOVEMBER 1, 2014!

AFFIRM 2015-2016

DATE:
Spring 2015

LOCATION:
San Francisco, California









THE IMPACT

More than 100 participants
from
20
countries

Outstanding things that
SURO and AFFIRM members have done:

  • Started a new hemophilia local chapter organization
  • Served in a leadership position at a national hemophilia organization
  • Launched a hemophilia camp
  • Developed videos for people with hemophilia
  • Represented the local hemophilia society before the department of health
  • Educated healthcare providers about hemophilia
  • Attended regional and global conferences on hemophilia
  • Become thought leaders on social media in the hemophilia community

OUR LEADERS

VAIBHAV

2010-2011 class of
Step Up Reach Out

JORGE

2010-2011 class of
Step Up Reach Out

EMIL

2007-2008 class of
Step Up Reach Out

ANDREW

2010-2011 class of
Step Up Reach Out

LINO

2009-2010, Step Up Reach out
2013-2014, AFFIRM

CARLOS

2010-2011 class of
Step Up Reach Out

CONTACT

You may use the form below to submit questions about the SURO and AFFIRM programs.
Please be assured that personal information submitted in this form will be kept confidential.
and will only be used to respond to your request.

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